Serving northern Indiana and southwestern Michigan. Quarterly meetings are typically held in South Bend or Mishawaka. We also have an EDS awareness booth at the Sunburst Races Expo. For more information or to be put on the mailing list, email email@example.com.
We are officially part of the Marfan Foundation Communities, but we ore open to and encourage participation by anyone impacted by any connective tissue disorder. We meet on the last Sunday of the month at First Presbyterian Church in Royal Oak, MI. Due to the holiday season, our next meeting is Sunday, Jan 25th, from 2:00 - 4:00 pm. Please contact Gary Moultrup at firstname.lastname@example.org with any questions.