Fundraising and Awareness

Considering holding a fundraising event?

One of the best ways to help spread awareness in your community is to hold a fundraising event!  Please note that while the Ehlers-Danlos Society is grateful to all who hold fundraising events, we are unable to assist you with your fundraising event by sending staff, helping plan, or providing printed materials.

We do encourage you to print and hand out our Resource Guides, as they are a wonderful tool to help teach others about Ehlers-Danlos syndrome.

If you intend to hold a fundraising event, please fill out our Third Party Fundraising Agreement and Liability Release, and return it to us via email at or fax at 703-506-3266.

You can also utilize the tools below to help raise funds:

First Giving: Start an individual fundraising page in minutes using the instruction on the this link. Funds that you raise will go to the Ehlers-Danlos Society’s general fund. Help us realize the dream of EDS research, physician training, and clinical advancement by participating in our Rally. You can donate directly, share the site with friends, or create your own Rally in support of EDNF’s. Funds raised through will go towards the EDNF Center for Clinical Care and Research at GBMC.

AmazonSmile: Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases when you shop at