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Latest News & Alerts

Ehlers-Danlos Syndrome: No longer invisible
Posted on December 18, 2015
Ehlers-Danlos National Foundation Announces New Leadership
Posted on July 30, 2014

EDNF Installs 2014-2015 Board of Directors


(McLean, VA, July 30, 2014) – The Ehlers-Danlos National Foundation (EDNF) is pleased to announce its 2014-2015 Board of Directors... more »

Katie Couric hosts EDSers on Her Talk Show, Katie, on December 10th - Bringing EDS Closer to the Spotlight.
Posted on December 10, 2013

For the video and access to the the show's message boards, click here:

Don't forget to share this link with anyone... more »

New EDNF Web Site Coming This Year
Posted on October 16, 2013

As we approach a year that will include the opening of the ... more »

Opioids Continue to Be Effective Long Term
Posted on October 2, 2013

An extensive literature review of studies evaluating the effectiveness of long-term opioid therapy in chronic noncancer pain (CNCP) concludes that the drugs continue to provide reliable and safe... more »

SSRIs Linked to Upper GI Bleeds
Posted on September 25, 2013

Short-term use of selective serotonin reuptake inhibitors (SSRIs) for just seven days may pose a significant increased risk for upper gastrointestinal (GI) bleeding, new research suggests.

... more »
New Way to Detect Sleep-Disordered Breathing in Children
Posted on September 24, 2013

A new test for detecting sleep-disordered breathing in children could put an end to cumbersome and expensive overnight sleep studies, researchers report.

Sleep-disordered breathing is... more »

Five-Step Plan Helps Patients Cope With Pain
Posted on September 15, 2013

A critical component in the treatment of chronic pain is teaching patients strategies for coping with the pain, and an approach focusing on five essential coping skills offers beneficial, cost-... more »

National Champion Figure Skater John Coughlin Announces Support for EDNF
Posted on September 12, 2013

(McLean, VA, September 9, 2013) – Ehlers-Danlos National Foundation (EDNF) is pleased to announce that U.S. pairs figure skater John Coughlin has become a public supporter of the organization.... more »

Codeine Could Increase Users' Sensitivity to Pain
Posted on September 12, 2013

Using large and frequent doses of the pain-killer codeine may actually produce heightened sensitivity to pain, without the same level of relief offered by morphine, according to... more »


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