For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our Helpline volunteers at firstname.lastname@example.org. Your email will be responded to as soon as possible.
Do not call EDNF headquarters office as we will only redirect you to the Helpline email address.
EDNF’s mission is to spread awareness and knowledge of EDS, educate medical professionals, and foster and fund research. We do not have physicians in our employ and we have a very small staff. Our Helpline is run by volunteers, not by EDS health care providers or specialists. Contacting one of the Helpline volunteers implies an understanding that it is no substitute for medical advice and/or care by a professional.
Disclaimer: The Ehlers-Danlos National Foundation (EDNF) is a 501(c)(3) health advocacy organization. EDNF does not provide medical advice or treatment. We are not a health care provider. It is important to realize that information provided by EDNF is not meant as a replacement for proper care from a doctor, therapist or other health care providers. It is vital that you talk with your health care providers regarding the diagnosis and treatment options for Ehlers-Danlos syndrome and related connective tissue disorders. Minors should consult with a parent or legal guardian when considering treatment and providers.