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EDNF HelpLine

EDNF does not offer medical diagnosis or recommend treatment options and/or physicians. We are here to provide information to those suffering with Ehlers-Danlos syndrome, build awareness and provide knowledge. You may wish to contact one of our volunteers via our HelpLine to answer some of your general questions. EDNF headquarters staff will redirect you to the HelpLine. We do not have medical professionals in our employ.

Contacting one of the HelpLine volunteers implies an understanding that it is no substitute for medical advice and/or care by a professional. For a full description, see the disclaimer language on this page. You may also want to review our Physicians Directory.

For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our HelpLine volunteers at ednf2012@gmail.com. A member of the volunteer staff will respond to your request within 72 hours. Do not call EDNF headquarters office as we will only redirect you to the HelpLine email address.

Disclaimer: The Ehlers-Danlos National Foundation (EDNF) is a 501(c)(3) health advocacy organization. EDNF does not provide medical advice or treatment. We are not a health care provider. It is important to realize that information provided by EDNF is not meant as a replacement for proper care from a doctor, therapist or other health care providers. It is vital that you talk with your health care providers regarding the diagnosis and treatment options for Ehlers-Danlos syndrome and related connective tissue disorders. Minors should consult with a parent or legal guardian when considering treatment and providers.

Medical professionals in our directory were initially recommended for inclusion by EDNF members, and provided written permission before being listed. It is maintained on a yearly basis. EDNF does not endorse or recommend individual health care providers. You are solely responsible for interviewing and selecting practitioners. By requesting health care provider resources you understand and agree that EDNF and its affiliates are not responsible for any providers’ services or lack thereof including any discussions you may have with our volunteer community.

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