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Early Bird Registration is Now Open!!

The EDNF 2014 Annual Learning Conference will be held at the Hilton Americas Hotel in Houston, TX, from July 10-12!  


Don't delay - Early Bird registration is now open until May 6th.  Take advantage of this discount and register today!

Please note your full conference registration includes your Friday and Saturday lunch tickets, as well as your Saturday evening banquet ticket.  A one-day Friday registration will include your Friday lunch ticket, and a one-day Saturday registration will include your Saturday lunch and evening banquet ticket.  A Kids & Teens registration will also include a Friday and Saturday lunch ticket, as well as a Saturday evening banquet ticket.

Conference Schedule

We are thrilled to announce the following speakers for the 2014 Learning Conference:

Sam Bailey, MS, CGC
Dr. John Belmont, MD, PhD
Dr. Clair
Francomano, MD
Dr. Heidi Collins
Dr. Imad Jarjour, MD, FAAN, FAAP
Dr. Fraser Henderson
Dr. John Mitakides, DDS
Dr. Shaine Morris, MD, MPH
Dr. Derek Neilson, MD
Dr. Alan Pocinki, MD
Professor Rodney Grahame
​Dr. Brad Tinkle
Shani Weber
Heather Butler-Pierce

We are diligently working to finalize our speakers and their session topics, and will have more information available later.  Thursday will consist of Physician Consultations, beginning in the early afternoon, and a Welcome Reception for all conference attendees that evening.  Friday and Saturday will consist of educational sessions all day, concluding with Saturday night's Banquet.

Kids & Teens Program

This year's Kids & Teens program will serve children and teens ages 5-15 years old. The EDNF Learning Conference will provide developmental curriculum, activities, games, and educational sessions with doctors and other related speakers. While we will focus on encouraging the children, teens and students to gain a deeper understanding of EDS, we will also provide opportunities for them to have fun, and gain some deeper relationships with children and teens from all over the country! A strong focus this year will be about inspiring a better future with greater possibilities.

The 2014 Learning conference will offer a new track of sessions with focus on teens and young adults. These sessions will provide a comfortable environment for young adults to meet with doctors and other inspirational individuals while they get to know one another in a more personal setting. We will also have a teen/young adult lounge where they can relax, play some games and work on other activities at their leisure.

We hope to see you at the conference! Please feel free to reach out to Kate Gilbert at with any questions, comments, or concerns.

Conference Scholarships

The deadline to apply for conference scholarships has passed, and notifications will be made the week of April 21st.  Those who are not awarded with a scholarship will have until May 6th to still be able to register at the Early Bird rate.

It is our dream to help as many people as possible attend the Learning Conference.  Help us achieve this dream by making a donation to the 2014 Learning Conference Scholarship fund.  

Physician Consultations

We are pleased to offer consultation appointments with several of the physicians speaking at EDNF's 2014 Learning Conference. There are a limited number of appointments and they will be brief, up to 20 minute time slots. The purpose of these appointments is to meet with one of our EDS specialists and discuss an issue you may be confronting. This will not be a substitute for regular ongoing medical care or diagnosis. Again, only a limited number of appointments will be offered. Once all the applications are received, the EDNF Conference Committee will review and assign appointments.  Apply here.

Hotel Information

Hilton Americas Hotel
1600 Lamar Street

Houston, TX 77010

The EDNF Discounted Room Rate for the Hilton Americas Hotel is $160.00 per night plus tax.  Discounted Room Rate available until Wednesday, June 18, 2014 or until the block is filled.  Please call 1-800-HILTON and request the EDNF room block or mention our unique group code: 1ED. Additionally, you can make your discounted reservation online! Click here to book your discounted room. Please do not delay in making your reservation! ADA King, as well as two bed ADA Queen Rooms, refrigerators, and down alternative pillows are available on a first come first serve basis. Please contact the hotel to make a special request. 


Travel Information

The largest Houston airport is Bush Intercontinental Airport (IAHC) it is approximately 20 miles from the Hilton Americas hotel. Hobby Airport (HOU) services domestic flights and is approximately 10 miles from the Hilton Americas hotel. Both airports have SuperShuttle options, EDNF has a discounted rate for the shuttle, please click here to book your discounted airport shuttle. For additional travel information visit Houston Travel Tools & Info or Things to do in Houston.

Sponsorship/Exhibitor Opportunities

Interested in sponsorship or exhibit opportunities?  Review our 2014 Annual Learning Conference Prospectus and contact Anita Parker, Senior Director of Resource Development, for more information.


In compliance with ADA regulations, EDNF will take all reasonable steps to ensure that registered attendees are given equal and reasonable opportunity to participate in the program offered by EDNF. If you have a special request, please call our office to discuss accommodations at 703-506-2892.

Registration Cancellation Policy

All cancellation requests must be received by the EDNF Headquarters on or before Tuesday, June 10, 2014, and will result in a refund of fees less a $50 processing fee.  There will be no refunds for cancellations received after Tuesday, June 10, 2014.  Cancellation requests may be made via phone (703.506.2892) or e-mail (  


Thank You to our 2014 Learning Conference Sponsors

Silver Sponsor


Bronze Sponsor

EDS Awareness

Friend of EDNF

Purdue Pharma L.P.

Creating Knowledge
Building Community
Promoting Change